Here is what Nick Benefield and I wrote about it in 2008, in our editorial for a special edition of 'Mental Health Review Journal':
When human development
is disrupted, the psychological, social and economic consequences can reach
into every area of an individual’s personal and social world, resulting in
alienated and chaotic lives and repercussions throughout their communities. The causes of this disruption may cover the
whole range of physical, environmental, psychological, social and economic
factors: from an unlucky genetic inheritance to a difficult birth, child abuse,
inadequate parenting, failed attachment, trauma or emotional deprivation. The
causes can also be poverty: material poverty, or the poverty of expectation that
leaves individuals feeling powerless to have any impact on the world in which
they live.
Over-riding
differences in class and educational advantage confer some with strong
constitutions - or a range of poorly understood protective factors – which may
be sufficient to enable them to withstand the impact of these environmental failures
and emerge from their early experience to live what appear thriving and healthy
lives. However, very many end up in a situation where they are excluded from
mainstream society, rejected by those who might be able to help them, and
destined to live lives of unremitting frustration, without the happiness and
fulfilment that most of us would consider just - and expect for ourselves and
our families.
These individuals, and
often their families, have little psychological sense of their place amongst
others or where they fit into society. School, working lives and almost any pro-social
relationships are difficult or impossible to establish and sustain. They
experience the world as a hostile, unhelpful, threatening or undermining
environment, living in a marginalised underclass with high levels of substance
misuse, self harm, criminality, and suffering severe, enduring and disabling
mental distress. People in this situation will often use a considerable range
of statutory services to little benefit.
A minority will
receive a formal diagnosis of personality disorder and so gain access to
appropriate PD intervention services. However, the majority will receive an
ambiguous and often prejudicial formulation of their difficulties and will more
likely to meet a range of unsatisfactory public service responses. Dependent on the immediate presenting
difficulty, this response will often be inconsistent and have little relevance
to the core psychosocial problem faced by individuals who are trapped in the experience
of a failing relationship with the world around them.
Current government policy on personality disorder
is seeking to change this and achieve three objectives: to improve health and
social outcomes, to reduce social
exclusion, and to improve public protection. Three separate policy initiatives
have broadly begun to address these through the Social Exclusion Action Plan: “Emerging
PD in Children and Adolescents”; “PD - No Longer a Diagnosis of Exclusion” and “Managing
Dangerous Offenders with a Severe Personality Disorder”. New legislation in the
form of the Mental Health Act 2007 also aims to improve access and rights to
treatment for those individuals most severely affected by personality disorder.
In all three areas of this work, progress is being
made. The papers in this issue of the Mental Health Review give some indication
of learning and experience in the field so far. Evidence from DH funded pilots across the country is
emerging to demonstrate that that answers do exist, but that they do not lie in
a traditional mental health treatment model or straightforward social policy -
but rather in sophisticated cross-agency work that takes in the experience and
expertise from various sectors: including health, social services, offender
management, housing, social security and the voluntary sector. It also involves
new forms of partnership with service users themselves – where they can feel
themselves as active agents in their own recovery, rather than the passive
recipient of technical expertise.
This is the very beginning for a field that is more
complex than a disease model or unitary interventions can address. At this
stage there is a need to continue to encourage evaluated and researched service
innovation, and establish a workforce equipped to meet the demand for skilled
and specialist intervention. To be effective, this will require closer
collaboration across public services to ensure the relevance of personality
disorders is understood and informs policy, strategy and service provision
across the fields of health, social care, education and criminal justice.
Since the community programme was closed in 2011, we have continued to work on the 'relational principles' behind this. The 'PD tube map' was an attempt to demonstrate the pervasive and profounf effects of what we diagnose as 'personality disorder'; and the complexity and interrelation between the systems and services we had set up to tackle it. Here is the tube map:
And a link to a higher quality pdf of it https://tinyurl.com/PDtubemap
So, with particularly useful input from the Offender PD team at NHS England and NOMS (National Offender Management Service), we started to design a more 'serious' version. It is likely to be adopted by the criminal justice sector as a useful model, and there is interest that we are pursuing from the health and education sectors. The hope is that it could convey the importance of considering a non-linear and complexity-based framework for policy and commissioning in all public sector areas concerned with the various 'failures' of adaptive human development.
At the recent Inverness meeting of BIGSPD, we started a consultation about the model - which has so fare been through eleven iterations. Following the very detailed and informative discussions we had about it in Inverness, here is the latest - version 12:
If you have any thoughts about it, please join the consultation and send your thoughts and ideas to Nick: nick.benefield@icloud.com .
But please don't use it or redesign it for your own purposes, as it is only an early draft at this stage. We are the copyright holders and we'll be after you if you do!
I wish you luck on your quest to bring a modicum of sanity (no pun intended) to the chaos that modern psychiatry. There needs to be much more money for research available so that the underlying issues can be explored in a manner more befitting of the importance if the subject. God bless you and all the work you do.
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